The Love that Lives On….Because Every Life Matters

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We do not write every story, and try to guard the privacy of the families we serve. Some are more open to sharing their journeys than others. And, that’s completely understandable. Their stories are sacred and personal. SGM has walked with about 25 families at various hospitals throughout Ohio in the last few months. It is an honor and a privilege to meet and care for each precious life…to come alongside every family. But, I want to share about a recent experience that touched our hearts deeply.

I met Ahna at a restaurant just that morning to iron out her perinatal hospice birth plan for their baby, due to be born in about a month. Gavreel had a life-limiting condition known as anencephaly. The connections that brought us together were no accident. And, I marveled after our meeting at the mystery of our God and the ways He works.

Some of you may know that SGM has been blessed to have Bethany Conkel on our team as an SGM Doula and Remembrance Photographer. Bethany also is the the founder of Purposeful Gift, a non-profit organization founded to help connect and advocate for families carrying a baby with a life-limiting diagnosis who are seeking the option of neonatal organ donation. She connects families with the resources, researchers, and available organ recovery surgical teams through organizations like IIAM and Life Connections. Some families may find comfort in having the option to donate their baby’s organs to help save another life.

This family had chosen organ donation. And, it was my first time supporting a perinatal hospice family as a doula through SGM who had chosen donation. I have been so deeply touched by the experience and by the incredible family we walked with over the past few days including those who came together to ensure that we were able to give them the most we could during their son’s brief and amazing life.

We didn’t expect to get the call late on the night of the same day as our birth plan meeting. But babies come on their own schedule! When I entered the room, mother was about to deliver as her loving family surrounded her bed, holding her hand, stroking her hair. We talked through the contractions and pushing. And he was born not long after my arrival. I communicated with the incredible team made up of Bethany and the organ recovery surgeons from Life Connections as they traveled in the wee hours of the night/morning over 3 hours to perform the surgery…to honor this child’s precious life…to give this family one of their wishes for their son’s legacy…and to help save the next baby’s life…because he lived. Because this child lived…someone else’s life may be impacted. Because every life impacts this earth…no matter how tiny. No matter how brief.

He was passed around and loved on, held for his whole life. Knowing nothing but love during the hour he lived. I stood in awe of the love that filled the room. The familiar glory of comfort and peace while standing in the place where heaven meets earth. We captured the memories and created mementos. When the recovery team arrived and went over details and procedures, I stood in awe again of my beautiful friend, Bethany and the way God is using her to make such a difference in so many lives through her organization. I love the way he has brought us all together to give families all that we can, connecting them with resources.

I wondered about the surgeons who would drop everything in their lives to drive hours in the middle of the night. That act alone gave me a window into their hearts. When I met them, I saw the care and passion in their eyes for what they do. I saw first hand how gentle and loving they were, how much respect they had for this precious boy. And, I walked away thinking….they share the passion we carry in our own hearts at SGM. They’re our kind of people. People who would leave their lives in the wee hours to give what they have to give to a family saying goodbye to their baby. Mutual respect all around. Which in itself is a miracle born from those few days…because so few people understand the willingness to allow your own world to stop as you step into someone else’s story for awhile…in order to walk with them. But, they do. And, they did.

In addition to partnering with Purposeful Gift for this family, we had the privilege of using the Cuddle Cot, donated to SGM by Owen’s Gift (founded by another wonderful family we were honored to serve). The Cuddle Cot helped them keep their son in the room with them during their entire hospital stay.

I can’t say how humbled and grateful I am to have known this tiny hero. And, to have known his beautiful, love-filled family. Not to mention how my heart melts to think of all who came together to honor their wishes. It is always a struggle when there aren’t adequate words to say what’s rattling around in my heart. But, when such stark, take-your-breath-away beauty rises from the broken, there is nothing like it this side of heaven. No word worthy to describe it. It changes you, becomes part of you, humbles you, astounds you, touches you so deeply…so profoundly…that you carry it with you always.

Sometimes the raw beauty in the midst of brokenness is astounding. The love that can fill a room…love for a little life. Love for one another. The impact a tiny life can have on the entire world…on one soul…on a thousand souls. Because every life really does matter. My heart cannot even describe or contain the overwhelming beauty of what happens in the sacred place where heaven meets earth. Or the humbling privilege that I’m allowed to walk there bearing witness to the treasure of such love wrapped in the tiniest miracles.

How blessed am I among women to walk in such sacred places.

For more information about support offered by Sufficient Grace Ministries for families facing a life-limiting diagnosis, please click here.

To request support materials, please visit our Dreams of You Shop for Parents.